We're sorry to hear that and would love to try to support you. We know it can be overwhelming when you're diagnosed figuring out what the disease means, what you can't/can eat, and how to adjust your lifestyle. Our San Diego non-profit support group of over 100 people of all age groups are also here for you or your diagnosed family members or children.
As your diagnosing medical doctor may have told you, a lot of dietitians are not necessarily trained in following a celiac safe gluten-free diet or are keeping up on the sometimes monthly important changes in packaged products or products. grains, flour, lentils, and seeds, that you think should be naturally gluten-free but may get cross contaminated in trucks, mills, or processing
The most important tool for those newly diagnosed is surely to connect with one of the several knowledgeable celiac specializing dietitians in San Diego. We believe connecting with them will shave many months off of your learning curve for following a celiac-safe gluten-free diet. It's incredibly helpful to have a support group, also. Getting help from a celiac specializing dietitian and participating in a support/advocacy group were two of the top recommendations by the National Institute of Health for those newly diagnosed with celiac disease.
Additionally, here is a special powerpoint presentation just for those who are newly diagnosed with celiac by the National Celiac Association (NCA) in Boston and expert celiac dietitian Melinda Dennis, MS, RDN as a starting point. The presentation was also reviewed by several doctors on NCA's Board. It was last updated in May 2018.
If you should like to contact us, or setup a get together with one of our Board members, please feel free to reach out to our Vice President Michele Vargas at firstname.lastname@example.org. We also have kids/teens/parents that are happy to talk or get together with you if we can help.