May 20, 2020: FDA Temporary Labeling Policy Change - Due to food shortages, food manufacturers have asked the FDA to allow them to subsititute certain ingredients without the need for a label change during the pandemic. Tricia Thompson, MS, RD of Gluten Free Watchdog addresses her concerns about this here.
Jan. 18, 2018 - Liquid Chromatography–Mass Spectrometry Analysis Reveals Hwww.verywellfit.com/gluten-free-easter-candy-562450ydrolyzed Gluten in Beers Crafted To Remove Gluten; Michelle L. Colgrave, Keren Byrne, and Crispin A. Howitt Journal of Agricultural and Food Chemistry 201765 (44), 9715-9725 https://pubs.acs.org/doi/ipdf/10.1021/acs.jafc.7b03742 "The industry standard, a competitive ELISA, may indicate gluten values <20 mg/kg, which is deemed safe for people with CD. However, in this study, liquid chromatography-mass spectrometry analyses revealed gluten peptides derived from hydrolyzed fragments, many >30 kDa in size. Barley gluten (hordeins) were detected in all beers analyzed with peptides representing all hordein classes detected in conventional beers but also, alarmingly, in many gluten-reduced beers."
Dec. 5, 2018 - New "imaware" at home celiac bloodworth test launches, which looks at the same antibodies to gluten as the tests that doctors use in their offices as the first step to diagnose celiac disease -- anti-tissue transglutaminase (tTG) and deaminated gliadin peptide (DGP) tests.-https://www.beyondceliac.org/research-news/imaware-home-celiac-test-launches/ Note, in the US, a biopsy and/or second set of blood tests taken at a later time is almost always required for a celiac disease diagnosis.
Aug. 14, 2018 Sign up for the Harvard Medical School's Celiac Research Program and the National Celiac Association’s Celiac Nov. 10 and 11 Celiac Conference near Boston, designed for patients, dietitians, and registered nurses (CEU’s available for RNs and RDNs): https://nationalceliac.org/2018-celiac-disease-symposium/
May 9, 2018: See Q&A's from Boston's 2017 Symposium Q&A from leading celiac gastroenterologist Daniel Leffler, MD, MS, and researcher at Harvard's Beth Israel Deaconness Medical Center, including his answers to the following questions: (1) How do you differentiate between a “Super sensitive” celiac and refractory celiac? Are there treatment options for either? (2) When diagnosed I was told not to drink “gluten removed” beer. With KumaMax, would that change? Is KumaMax only for very small cross contamination? Can it break down anything other than gluten? (3) Do you foresee a way for successful new therapies to prevent symptoms of gluten ingestion during a gluten challenge (so those challenged are less sick)? (4) What are the risks involved in being part of a research study for celiac patients who will need to ingest gluten? Will it increase chances for comorbidities? (5) What is the timeline for Larazotide or any of the other intraluminal (in the cavity of the small intestine) therapies? (6) Does the Nexvax vaccine also cause intestinal damage as it induces symptoms?
gnificant \Study Published on the Amount of Gluten Eaten by Folks with Celiac Disease on a Gluten-Free Diet
April 25, 2018: videos from Sheila Crowe, MD's talk at the NCA Orange County/NCA San Diego Advanced Gluten-Free Training in Orange County on Feb. 3 are available online on our site now. The videos from Melinda Dennis, MS, RDN's talk will be available next week.
April 25, 2018: Gluten Free Soy Sauce Issue at Gluten Free Restaurants: You may wish to share this letter with local restaurants from GlutenFreeWatchdog.com to encourage compliance and be sure to report incidents where you suspect glutening to the state and FDA.
April 24, 2018: Thank you so much to Dr. Wolosin for his time and knowledge at the filled-to-capacity National Celiac Association San Diego support group meeting at Rady Children's Hospital last Saturday. Thank you also Dr. Wolosin for sharing your slides with us for those who could not attend!
March 19, 2018: Genetics play a surprisingly minor role in shaping the gut microbiome, while environmental factors like diet and lifestyle appear to have the greatest impact, according to new research published in Nature.
Dec. 13, 2017 - FDA offers guidance on gluten-labeling for medications. They've also invited comments on their proposed labeling recommendations. Read more: https://hubs.ly/H09r-N_0 (thank you to BeyondCeliac.com for your post)
Nov. 18, 2017 - At Home Personal Gluten Detection Kits Now Available - Though the tests are not FDA approved, the urine test claims to detect gluten to 500 mg eaten in the past 24 hours, while the stool kit is supposed to be more sensitive and claims to detect 50 mg of gluten eaten in the past couple of days. The kits are $48 for 2 tests. See BeyondCeliac.com for more Information.
Aug. 26, 2017 The FDA appears to have stopped enforcing the gluten-free labeling law. A petition-like docket has been submitted to the FDA by celiac dietitian, Tricia Thompson, to try to stop the blatant violations of the gluten-free labeling law. Her petition will only help if many people from across the country agree with the petition, which would be indicated by adding a comment to the docket stating your support. Please consider adding a comment to this docket. Click here for more information or here for additional instructions.
Aug.7, 2017 - As reported by the National Celiac Organization: If you dine at Chipotle, please be aware that some branches are now offering a fried dessert, buñuelos, that contains gluten. At those branches, the corn tortilla chips will be contaminated due to being fried in the same fryer with the buñuelos. Read about it here.
July 6, 2017 - How do we get the FDA to investigate products which are not following the gluten-free labeling law? A nationwide campaign #EnforceGFRule is underfoot to get the FDA's attention and encourage investigation and follow through into the products that are in violation of the law. From Tricia Thompson, MS, RDN of GlutenFreeWatchdog.org: Encouraging the FDA to investigate when products labeled gluten-free appear misbranded.
Jan.2, 2017 - Yoplait yogurt - If you like Yoplait Yogurt from General Mills, you might want to explore the Yoplait brand. Evidently it isn't labeled GF anymore. Below is the information from the person who wrote on the Celiac ListServ:"We have been using Yoplait Original yogurt brand for years as they were, by phone and then by label, noted as gluten free. Well they have just changed their packaging for the originals and they are no longer labeled GF. And a call to the company, General Mills, led to the response that if it is not labeled GF it is not considered GF anymore due to ingredients or cross contamination. It makes me angry when companies do things like this. As with all our other foods, we are brand loyal and will begin to eliminate General Mills products from our home. Not that they care about one customer or seeming the celiac community."
Nov. 30 - New Free Program for Those Struggling with Celiac Disease, recommended by Lori Welstead, MS, RD, LDN, a dietitian from the University of Chicago School of Medicine:
Program Title: POWER-C (Promotion of Optimal Well-being, Education and Regulation for Celiac Disease)
Program Description: A FREE brand new, online, evidence-based program for people newly diagnosed and/or struggling with celiac disease. All North American adults diagnosed with celiac disease (blood test and/or biopsy) are eligible to participate. POWER-C contains 4 modules to be completed bi-weekly over the course of 8 weeks. For more information or to sign up - please email Lori Welstead, MS, RD, LDN at email@example.com<mailto:firstname.lastname@example.org> and indicate that you are interested in the POWER-C study.