Celiac Resources For Those Newly Diagnosed
CeliacNow.org, created with support from a grant to Harvard's Beth Israel Deaconness Medical Hospital's Celiac Center was co-authored by one of the country's top celiac specializing dietitians with celiac disease herself. It's a rich, additional completely free resource to learn basic through advanced skills for following a strict gluten-free diet.
- What to do about Gluten-Free food when you're in the hospital? https://nationalceliac.org/celiac-disease-questions/gf-hospital-food/
- National Celiac Association website: NationalCeliac.org
- Beyond Celiac: What is Celiac Disease
- An Overview of Celiac Disease from Verywell.com (Reviewd by their Medical Advisory Board and Updated Feb. 21, 2019)
- Beyond Celiac Infographics: Facts About Celiac Disease, An Invisible Illness, and the Psychosocial Impacts of Celiac Disease https://www.beyondceliac.org/60forceliac/#infographics - Note: Members say this is helpful when explaining the need for support and assistance in schools and other institutions.
- Help yourself and your community long term. Ask the restaurant manager if they have recently trained all of their food staff using one of the three nationally available gluten free certification programs. These three programs go extensively beyond the very basic ServSafe training related to celiac: Beyond Celiac/Great Schools/Great Kitchens (this program is online and only costs ~$100 per manager).
- Check to make sure the restaurant's flours, grains, legumes, and seeds used to prepare menu items are labeled gluten-free, since cross-contact can be a problem with many naturally occurring gluten-free grain flours, including rice flour (over 30% of naturally occurring gluten-free grains were significantly cross-contact with gluten in a 2010 study).
- Ask any bakery or restaurant who bakes their own gluten-free products if and how often they test their final products using the R5 ELISA Ridascreen Gliadin Competitive R7021 (R-Biopharm AG) . A competitive ELISA is used when assessing food for gluten protein fragments, which occur when gluten protein is hydrolyzed or fermented. A "dipstick, in house test" is not adequate according to leading celiac dietitians and researchers.
- Check to make sure any San Diego restaurant or bakery is using purity protocol oats, not just oats that are labeled GF or certified gluten-free.
- Check to make sure any restaurant or bakery follows these necessary protocols:
- Wash hands thoroughly.
- Use a separate gluten free work area.
- Use dedicated gluten free cutting boards.
- All utensils, colanders, stainless steel cookware, and toasters should be dedicated for gluten free food only.
- Grills, griddles, and fryers should also be dedicated for gluten free food.
- Do not cook gluten free pasta in water used to cook regular pasta.
- Ideally, gluten free food should be served on plates shaped differently than those used for gluten containing food. This will help to avoid confusion in the prep area and at your table..
- You should be be especially careful at pizza establishments serving "gluten-free" pizza - some are not as safe as others (see adjacent slide, courtesy of Melinda Dennis, MS, RDN).
Some Dedicated Gluten Free Restaurants in San Diego
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We do not have any testing information from these restaurants. No endorsement is necessarily implied.
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Some questions to ask manufacturers of grains, flours, and legumes labeled gluten-free:
- What type of facility do you use (ie. dedicated gluten-free)?
- Do you test your at-risk “raw” ingredients for gluten contamination and how frequently do you test?
- Have you validated your in-house testing procedure?
- Do you periodically send your finished product to a third-party lab for testing using the R5 ELISA? Do you work with the third party lab to determine best practices in terms of sampling and testing?
- For more information, here are two articles explaining more about it.
1) https://nationalceliac.org/celiac-disease-questions/certified-gluten-free-beans-grains/ and this
(2): https://www.glutenfreewatchdog.org/news/to-decrease-your-risk-of-cross-contact-with-gluten-choose-naturally-gluten-free-grains-seeds-and-legumes-labeled-gluten-free/
Travel Tips for Those with Celiac Disease or Those on a Strict Gluten-Free Diet:
- Article from GlutenFreeGlobetrotter.com - 10 Gluten-Free Kitchen Essentials for a Summer Rental:
- Article from VeryWell.com - 7 Tips for Gluten-free Road trips
- For cruises, it's often best to call week in advance to indicate you are medically gluten-free so they can prepare for you.
In a study conducted by Tricia Thompson, Anne Lee, and Thomas Grace, 32% of the naturally gluten-free grains and flours tested contained gluten in amounts greater than 20 parts per million. Excerpt from GlutenFreeWatchdog.org: "Unfortunately, the Food and Drug Administration under the gluten-free labeling rule is NOT requiring manufacturers to test their labeled gluten-free foods for gluten contamination. |
GlutenFreeWatchdog.org is a not for profit service which independently tests hundreds of packaged products with top-notch ELISA tests in triplicate to see how much gluten they really contain.
Click here to learn more about this service and how much it costs to subscribe. Curious about what kinds of products they test? Click here for the list of categories and number of products she's tested. |
Celiac Listserv
Sign up for the national Celiac Listserv (this is not related to our support group) if you'd like to receive emails from others around the country about celiac disease. The emails include primarily general Q&A's about celiac, upcoming non-profit celiac related events, recruiting for trials, and once a month info. about celiac cookbooks and special educational or travel programs for those managing the disease. The sign-up process begins with sending an e-mail to [email protected].
America's Test Kitchen Online Gluten-Free Cooking School
Learn how to bake gluten-free with America's Test Kitchen's online Gluten-Free Cooking School (this is not an endorsement, but we are just mentioning it as an option). See fee to participate online.
Learn how to bake gluten-free with America's Test Kitchen's online Gluten-Free Cooking School (this is not an endorsement, but we are just mentioning it as an option). See fee to participate online.
Virtual NCA San Diego Support Group Meeting with Expert Celiac Dietitian, Melinda Dennis - Watch Now!
Virtual NCA San Diego Support Group Meeting with Expert Celiac Dietitian, Melinda Dennis - Watch Now!Melinda Dennis, MS, RDN, LD, is the Nutrition Coordinator for the Celiac Center at Beth Israel Deaconess Medical Center. Diagnosed with celiac disease 30 years ago, Ms. Dennis specializes in the nutritional treatment of patients with gluten-related disorders. She lectures nationally and is Program Director of the nutrition and medical website: CeliacNow.org. Melinda served on the Executive Council of the Society for the Study of Celiac Disease (SSCD) and is currently a taskforce member of the SSCD’s Patient Resources and Literature Committee and of the Academy of Nutrition and Dietetic’s practice group, Dietitians in Medical Nutrition Therapy. She is co-author of the book Real Life with Celiac Disease, published by the AGA. She is Founder, former Chair, and current Senior Nutrition Advisor to the National Celiac Association and serves on the Executive Committees of the Celiac Research Program at Harvard Medical School and of Foodicine Health. Through her consulting business, Delete the Wheat, LLC., she offers educational webinars, gluten-free wellness retreats, and consulting assistance to food and pharmaceutical companies.